JOE
TORRES: To what do you attribute that?
MAXINE
GOLUB: It's due in part to poverty, which certainly has a huge effect
on people's educational attainment and the educational messages
that they receive in school. But we think it's more likely due to
racial bias in the health care system and racial profiling on the
part of doctors.
JOE
TORRES: Profiling in the sense that...
MAXINE
GOLUB: One study that was done last year by a physician named Kevin
Schulman and written up in the New England Journal of Medicine*
actually used actors… he taped four actors, a black woman,
a white woman, a black man and a white man with exactly the same
symptoms.
JOE
TORRES: Going to a doctor's office?
MAXINE
GOLUB: Going to a doctor's office complaining about heart symptoms.
And he showed that tape to 750 doctors at a convention; and what
he found is, if you consider what the optimum treatment was, which
in this case was an aggressive cardiac intervention, black men and
white women only received that treatment 60% of the time. And black
women only received that treatment 40% of the time. And I don't
know what else to call that except racial profiling. There's no
economic factor there. There was no insurance status factor there.
There was simply a doctor listening to the exact same words said
by a person of a different color and coming to a different conclusion.
JOE
TORRES: You mentioned education also as perhaps being one reason
why the quality of care is not good. How does education effect quality
of care?
MAXINE
GOLUB: In two ways. One is that patients really need to learn to
advocate for themselves and take care of themselves. If you're diabetic
you need to know that you should go to get your eyes checked once
a year. You need to know that you should go to get your feet checked
once a year. So if patients don't have that basic information, they're
not going to say to their doctor, "Gee you forgot to send me
for my foot exam." And that will end up in worse outcome. That
ends up in much, much higher rates of amputations for diabetics
in communities like the Bronx than in communities like Westchester
County.
JOE
TORRES: Because they simply don't know, right?
MAXINE
GOLUB: They don't know...
JOE
TORRES: They don't know the questions to ask.
MAXINE
GOLUB: ...and they don't get the care. It's that patients don't
know how to advocate for themselves and the doctors aren't advocating
for the patients because of this bias.
JOE
TORRES: A double-edged sword.
MAXINE
GOLUB: Absolutely.
JOE
TORRES: We highlight a problem. What's the solution?
MAXINE
GOLUB: Well there are a couple of solutions, and the coalition that
we're working with in the Bronx is hoping to implement a community
action plan that will actually implement these solutions. The first
and obvious solution is that everyone in the country needs to have
health insurance. The second is that we need to change who we're
recruiting to become doctors, because currently only 7% of the doctors
in the United States are people of color...and how we train those
doctors. We need to teach them more cultural competency, cultural
sensitivity, whichever words you prefer. And we need to eliminate
the racial bias in medicine. We need to overcome people's previous
training. And then we need to educate community residents about
how to advocate for themselves in the system.
JOE
TORRES: What can the individuals do for themselves?
MAXINE
GOLUB: They need to learn about their diseases and learn what constitutes
optimum care for their diseases. And they need to be fairly aggressive
when they're in their doctor's office to say, "I didn't understand
what you told me. Would you explain that again please?" So
that they don't walk out of a doctor's office feeling like they're
not sure what's the matter with them or what they're supposed to
do to maintain their health.
JOE
TORRES: How do you overcome entrenched ideas and approaches used
by doctors?
MAXINE
GOLUB: What we're hoping to do is really involve the community-based
coalition. We're going to use community members to help us train
doctors; and the community members are also going to monitor those
healthcare facilities so that ultimately patients can vote with
their feet as to who's catching on and who's not.
JOE
TORRES: The Institute spent how many months coming up with this
study?
MAXINE
GOLUB: We spent the last year in the planning phase of this program.
That involved a literature review and the focus groups that came
up with the conclusions that you mentioned, as well as the action
plan. And now we've been funded for the coming four years to the
tune of $4 million to begin to address this problem in the Bronx.
JOE
TORRES: Did you know what to expect when the report came and you
opened it? Shock and amazement, or not really much surprise?
MAXINE
GOLUB: Unfortunately, no surprises. And I've spent a lot of time
in the last year talking to community people in the Bronx and unfortunately
they're not surprised either. And that's the real tragedy here.
The one good thing is that the Federal Government has opened up
this dialogue and put money on the table so that we can begin to
address this problem.
JOE
TORRES: Is that where you go from here? Using the money that you
got from the Centers for Disease Control?
MAXINE
GOLUB: We're very excited about having the money. We're very excited
about the coalition we've built to address the problem and the cooperation
we've gotten. I think that we're going to be able to do something,
and that what we do will become a model for the rest of the nation.
That's what I'm excited about.
JOE
TORRES: Do you give yourself a timeline...a year from now, six months...before
you say "Let's re-look at the situation, see how we're doing?"
MAXINE
GOLUB: Different pieces of the project can be measured over different
periods of time. To suggest that we're going to eliminate racial
discrimination in medicine in a four-year period is pretty optimistic,
but we're committed.
JOE
TORRES: You've got to set high goals.
MAXINE
GOLUB: Absolutely.
JOE
TORRES: Maxine, a pleasure. Thank you so much for being with us
on Saturday morning on Tiempo.
MAXINE
GOLUB: Thank you.